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QUALITY OF CANCER REGISTRY STATUS IN AFRICA

Wednesday, November 6, 2019
7:15 AM - 8:20 AM
NEW HALL

Overview

Roundtable Discussion in New Hall


Speaker

Mr Marcel Dieu-Donné Egue
Cancer Registry of Cotonou

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN COTONOU (BENIN)

Abstract

INTRODUCTION Cancer is currently a major public health problems in Africa. 1.2 million new cases are predicted to occur in the continent by 2030 with more than 970 000 deaths if adequate preventive measures are not taken quickly. This study is based on incidence data from Cotonou (Benin) Cancer Registry and aims to describe the impact of cancers in the city of Cotonou over a period of three years (2014-2016).
METHODS The cancer Registry of Cotonou is a population based cancer registry (PBCR) it covers a population of 679 012 habitants (353 140 women and 325 872 men). The cases search is done by active methods. The methods follow those developed in the operating procedure manual of the African Network of Cancer Registries (AFCRN).
RESULTS Over a period of three years (2014 to 2016), a total of 1086 cancer cases were recorded including 608 cases (56.0%) in women, which corresponds to an age standardized incidence rate (ASR) of 92,6 per 100 000 person-years and 478 cases (44.0%) in men or ASR 54.5100 000 person-years. Breast and cervical cancer accounted for 49.2% of all cancers in women. Breast cancer (ASR: 25.0 percent 000 people-year) was more common than cervical cancer (ASR) 19.0 percent 000 person-years) and occurred among women at a relatively young age. Prostate cancer is the first dominant cancer in males (ASR 13.5 percent 000 person -years). Cancers of the digestive tract was also common in both sexes, mainly primary cancer of the liver.
CONCLUSION Cancer remains a common pathology in Cotonou. The most common types of cancer are: breast cancer, cervical cancer, prostate cancer and primary liver cancer.
Dr Martin Ogwang

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN UGANDA

Professor Olga Lompo
University of Ouagadougou

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN BURKINA FASO

Dr Josefo Ferro

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN MOZAMBIQUE

Professor Cesaltina Lorenzoni
Ministry of Health

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN MOZAMBIQUE

Dr Nestory Masalu
Bugando Medical Centre

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN TANZANIA

Ms Xolisile Dlamini
Ministry of Health

EXPERIENCES AND CHALLENGES WITH CANCER REGISTRATION IN ESWATINI

Abstract

INTRODUCTION The Eswatini population based cancer registry expanded from laboratory based to population based cancer registry in 2015. The expansion has been mainly to improve the response of the burden of cancers and provides proficient evaluation of the current cancer situation in the country. It covers about 1,093,238 (2017, census) total country population, data abstracted from both public and private health facilities (pathology centres and lancet)
CURRENT STATUS The office has four officers trained on cancer registry principles, data analysis and CanReg use. They were further capacitated in Cancer epidemiology and Childhood cancers which includes the staging and Quality data indicators such as; Completeness, Validity, Comparability and Timeliness. In 2017 the registry was admitted as a member of African Cancer Registry Network.
EXPERIENCES The office ensure cancer sensitization is done within the clinicians monthly in different facilities for sharing and data experiences updates within the different sources. Practical sessions on measuring and interpretation of own data completeness and validity; CanReg5 CI5 and data quality other software. A lot of capacity building has been done on data quality indicators, the process of establishment of the cancer control unit and development of the cancer control strategic plan. Through the gaps noted in data abstracted in the pathology lab which includes staging issues has helped the office to collaborate with other pathologists to strengthen the pathology services. The office has also helped in recruitment of the oncologist, medical officer and patient navigator to ensure a full capacity strengthen of the cancer management and care
CHALLENGES The common data quality challenges experienced in the registry are
i) Data incompleteness which include incomplete cancer data Information, poor record keeping, poor method of archiving and retrieval, and the weak bilateral relationship between registries and data source facilities. These results from unfavourable factors at the data sources
ii) Low validity of the data: There are challenges of diagnosing cancer in the country since we are experiencing some gaps in cancer diagnosis, staging and treatment.

Facilitators

Eric Chokunonga
Zimbabwe National Cancer Registry

Olufemi Ogunbiyi
University of Ibadan

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